Michael Maslinski shared a detailed account of life with his wife Maggie, who lived with dementia in a care home for nearly a decade before her death in April 2024. His narrative offers an intimate perspective on the challenges and unexpected moments of fulfillment experienced by both residents and their families in long-term dementia care settings.

Maslinski and Maggie moved into the care home following her dementia diagnosis. Despite the familiar clinical elements of the environment—such as handrails, hearing aid speakers, and medical-style furniture—he quickly grew accustomed to them. The facility featured multiple communal areas beyond a single television lounge, including a central “street” on the ground floor with a small shop, fostering a lively atmosphere. Residents could dine either in their apartments or in one of two communal dining rooms, where Maslinski often enjoyed socializing with fellow residents, some living with dementia and others maintaining sharp minds and rich life histories.

Although some residents gradually declined, Maslinski highlighted the importance of adaptation and sustaining connections. He recounted how simple activities, like walking outdoors or enjoying cultural events, helped maintain quality of life. In the early stages, Maggie participated in the home’s cultural offerings and celebrated birthdays with visits from friends and performances by a string quartet.

Maslinski emphasized the critical role of routine and personal advocacy throughout their time at the care home. He described how maintaining a consistent daily schedule allowed him to balance work commitments while providing regular care and companionship to Maggie. Walking was a central activity, which a doctor later credited with prolonging Maggie’s mobility and possibly extending her lifespan by several years.

One significant challenge arose as staff continuity diminished, with up to 30 different carers involved in Maggie’s personal care in a single year. Maslinski successfully advocated for a limited group of carers to manage her care, helping to reduce stress and prevent the administration of sedation often used to manage agitation in dementia patients.

Maslinski also reflected on systemic issues in dementia care, including the lack of recognition families sometimes face as decision-makers. His role as advocate became particularly vital during Maggie’s final days when he chose to keep her in the care home rather than transferring her to a hospital, a decision later deemed appropriate by medical personnel.

Maggie passed away peacefully on April 3, 2024, in the care home they had made their home. Maslinski described how she maintained her personality and affectionate connection with him until the end. Upon her passing, staff lined the corridors in a final tribute as she was taken from the home.

Maslinski documented their experience in his book, “What Would Maggie Do?” aiming to inspire others to advocate effectively for loved ones with dementia. He described the care home not as an institutional space but as a genuine home that provided dignity and community during the difficult journey of dementia.