Director Sian Heder’s new film “Being Heumann” chronicles the activism of Judy Heumann, a prominent American disability rights advocate, emphasizing both the struggles and sense of community in the fight for inclusivity. The film, featuring Ruth Madeley and Mark Ruffalo, premiered at the Toronto International Film Festival last week.

“Being Heumann” centers on a 1977 protest in which Heumann and a diverse group of disabled activists occupied a government building in California for several weeks. They demanded the enforcement of regulations aimed at increasing accessibility for people with disabilities. The demonstration became a significant moment in the disability rights movement, with Heumann often recognized as a leading figure in the cause.

Heder, who won an Oscar for her previous work, stressed the film’s relevance amid current challenges to previously won rights. “A lot of the rights that activists fought for and put their bodies on the line for in the 1970s are being rolled back completely,” she said. Heder highlighted that the film portrays not only the intensity of protest but also the joy and solidarity present among activists. “Activism doesn’t need to be only painful. It can be about community as well,” she explained. In preparing the script, Heder conducted 35 interviews and reviewed extensive archival material alongside co-writer Rebekah Taussig.

Ruth Madeley, a British actress with spina bifida who uses a wheelchair, took on the role of Heumann. She described the experience as a significant responsibility. “Judy is such an iconic figure, and I wanted to do her justice,” Madeley said, adding that authentic representation of disabled individuals in leading roles remains a milestone in Hollywood. The actress noted progress in the entertainment industry since she began her career, reflecting on earlier anxieties around requesting accessibility accommodations on set. “If there’s no accessible bathroom on set... I don’t need ramp,” she recalled feeling pressured to say. During filming, Madeley found it rewarding to encourage fellow actors to ask for necessary support without fear.

“Being Heumann” aims to remind audiences of the enduring impact of disability activism and the ongoing need for collective action to safeguard and advance rights. The film’s focus on both historical and present-day challenges underscores the continued relevance of Heumann’s legacy.