Brooke Elizabeth Eby, a social media advocate who brought attention to amyotrophic lateral sclerosis (A.L.S.) through her candid and humorous online presence, died on Thursday in Maryland at the age of 37. Her sister, Sarah Eby, confirmed the cause of death as complications related to the disease.
Diagnosed with A.L.S. at 33, Eby used platforms such as TikTok and Instagram under the handle @LimpBroozkit to document her experience living with the degenerative neurological condition, which progressively impairs muscle movement and is ultimately fatal. Her posts, characterized by dry wit and irrepressible charm, attracted an audience of about half a million followers. She frequently employed popular social media formats, including the “get ready with me” style videos, to discuss the daily realities of her illness, from adapting wheelchairs to managing personal care and dating.
Eby emphasized that her work was not solely for entertainment; she donated approximately half of her online earnings to A.L.S. research. In interviews, she expressed a desire to humanize the disease beyond statistics. "Maybe now when you hear about A.L.S., you picture me instead of just thinking about statistics," she said in 2025.
Her symptoms began subtly at age 29 with a tightness in her calf muscle, initially misattributed to exercise. After several years marked by increasing mobility challenges, including reliance on a walker, she received her diagnosis. A.L.S. most commonly affects individuals around age 50, making her younger-than-average diagnosis particularly notable.
Before becoming a public figure in the A.L.S. community, Eby grappled with the emotional and social toll of the disease. Early on, she experienced moments of depression and isolation but found comfort and acceptance by sharing her journey through humor and openness. A wedding experience, where she was initially self-conscious about wearing sneakers but quickly turned the situation into a moment of joy with friends dancing limbo around her walker, illustrated her shift toward embracing vulnerability and connection.
Beyond social media, Eby founded ALLTogether, a Slack-based network designed to link people with A.L.S., caregivers, researchers, and families, creating a supportive community. Her advocacy earned recognition from the A.L.S. Network, which named her advocate of the year in June.
Among her final initiatives was a collaboration with the adaptive clothing brand Silverts to design garments tailored to the needs of those living with A.L.S. and similar conditions. She shared details of this project in a video posted on the day of her death, using a text-to-voice system to present her “B.E. Collection” designed with both style and accessibility in mind.
Born on December 22, 1988, in Potomac, Maryland, Eby graduated from Lehigh University in 2010 with a degree in business information systems. She worked in New York and San Francisco for Salesforce, where her employer accommodated her evolving needs as the disease progressed. Eventually, she returned to live with her family in Maryland in 2024.
Eby is survived by her sister Sarah, brother Chris, and her parents, Clifford and Eugenia Eby. Reflecting on her journey, she often voiced a desire to provide a comprehensive perspective on living with A.L.S., acknowledging the uncertainty of the disease’s trajectory but remaining committed to sharing her story to support others facing similar challenges.