Brooke Elizabeth Eby, a prominent ALS advocate who used social media to raise awareness about amyotrophic lateral sclerosis, died Thursday in Maryland at age 37. Her sister Sarah Eby confirmed that complications from ALS, also known as Lou Gehrig’s disease, were the cause of death.
Diagnosed with the neurodegenerative disease at 33, Eby quickly turned to platforms such as TikTok and Instagram to share her experience, amassing approximately 500,000 followers under the handle @limpBroozkit. Through candid and often humorous videos, she chronicled the challenges and unexpected moments that came with the progression of her illness, encouraging connection and understanding among people affected by ALS.
Eby’s content ranged from daily life updates to creative projects like decorating her wheelchair and discussing adaptive clothing options. One of her earliest viral videos used the popular "get ready with me" format, in which she applied makeup while announcing her terminal diagnosis. She also involved friends and family in her posts, illustrating the evolving nature of her independence and mobility.
Beyond raising awareness, Eby was deeply committed to supporting ALS research and community building. She donated about half of her online earnings to research efforts and founded AlStogether, an online community hosted on Slack that connects individuals living with ALS to caregivers, researchers, and families. Sheri Strahl, CEO of the ALS Network, honored Eby with its Advocate of the Year award in June, highlighting her ability to transform personal visibility into broader support networks.
Eby’s diagnosis came after she first noticed unusual tightness in her calf muscle at age 29. Following persistent symptoms and her sister’s urging, she sought medical evaluation. By the time of diagnosis, four years later, her mobility had declined significantly, and she was using a walker while living in New York City. ALS is a progressive and fatal disease that impairs muscle control, typically diagnosed in people around age 50; cases among younger adults like Eby are uncommon.
Her youth and openness made her story particularly resonant. In a 2025 essay, she wrote that her experience personalized the disease for others, allowing people to think beyond statistics and see the human impact. Eby discussed the emotional toll of her condition, including early depression and social challenges, but also found strength in humor and community support.
One of her final projects was a collaboration with adaptive clothing company Silverts. In a video published on the day of her death using a text-to-voice system, Eby showcased a line of specially designed pants intended to meet the needs of individuals with ALS and similar conditions.
Born in Potomac, Maryland, on December 22, 1988, Eby graduated from Lehigh University in 2010 with a business information systems degree. She worked for Salesforce, balancing her professional career with the demands of her illness, including accommodations such as company-provided flights to conferences. Eby returned to live with her family in 2024 as her condition advanced. She is survived by her parents Clifford and Eugenia Eby, her sister Sarah, and her brother Chris.
Throughout her public journey, Eby expressed a desire to shed light on the realities of living with ALS, hoping her openness might ease the path for others facing the disease’s uncertain progression.