Approximately 3.4 million people in the United States, or about 1 percent of the population, live with epilepsy, a neurological disorder marked by recurrent seizures. Despite its prevalence, many individuals with epilepsy experience social isolation due to stigma and a lack of open discussion about the condition.

Kira Eyring, executive director of the Epilepsy Foundation’s Washington, D.C., region office, noted that shame and fear of judgment often make people reluctant to disclose their diagnosis. This hesitancy contributes to many individuals with epilepsy never meeting or recognizing others with the disorder, intensifying feelings of loneliness.

The stigma surrounding epilepsy may also influence funding disparities in medical research. Although Alzheimer’s disease affects roughly twice as many Americans as epilepsy, the National Institutes of Health (NIH) allocated nearly 18 times more funding to Alzheimer’s research in 2025 than it did for epilepsy. This discrepancy underscores challenges in raising awareness and securing resources for epilepsy-related studies.

Despite these obstacles, advances in treatment have improved the outlook for many patients. According to experts, up to 75 percent of people living with epilepsy can manage their condition effectively with current therapies, which include anti-seizure medications and, in some cases, surgical interventions. Researchers continue to pursue better treatment options and ultimately hope to find a cure.

One young individual’s experience highlights both the hardships and hopes of those affected. Luca, a boy living with epilepsy, described feeling alone in his condition but expressed optimism that this loneliness is temporary. He envisions a future in which he connects with others who share his diagnosis.

Luca aspires to become a neurologist specializing in epilepsy once he grows older. He envisions a time when a cure is available — one he hopes to administer to patients in need. “I want to help make people with epilepsy better because I care about everyone with epilepsy,” he said. “Even if I don’t know them, they are my friends. It feels good to know that I have so many friends. Even though I haven’t met them yet.”

His words underscore the importance of increased awareness and support for epilepsy patients, aiming to reduce social isolation and expand treatment possibilities in the years ahead.